Children his age would cry and run away from him.
11-year-old Ramesh, from Baglung, Nepal is slowly turning into stone after a rare skin condition hardened most parts of his body, also twisting his limbs in the process. Just a few weeks after his birth, his skin started to peel off and harden. Today, he could no longer speak or walk after the rare condition has literally ‘frozen’ him.
His mother, Nanda, said: “His skin started peeling off 15 days after he was born and then new skin began to grow very thick.
“It hardened and turned black, we had no idea what to do about it. No one helped us.
“He is only able to inform us when he’s hungry or wants to use the toilet. He used to sit and cry but we didn’t know what was hurting him or how to help him.
“Any young child would see him and run away crying. It was hard for him and us to watch.”
Ramesh’s family were unable to afford medical care on Nanda’s 7,000 rupees (£44) a month salary.
Thankfully, he has found fresh hope thanks to help from Brit singer Joss Stone, who has raised much-needed funds for his medical treatment. He’s now receiving treatment at Kathmandu Medical Centre, where things are looking up for the youngster.
What is Ichthyosis?
Ichthyosis is a family of genetic skin disorders characterized by dry, scaling skin that may be thickened or very thin. The prefix “ichthy” is taken from the Greek root for the word fish. Each year, more than 16,000 babies are born with some form of ichthyosis.
At present time there is no cure for ichthyosis, however dedicated researchers and physicians have and continue to develop effective ways to help manage the disorder.